Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Raising PKD awareness one good hYOUman tag at a time
Peeking in the window of a clothing store in Sedona, Ariz., the first thing I saw was a shirt with the words, “My life story will be a good one” printed on it. I immediately walked into the...
PKD Foundation establishes PKD in Children Council
PKD parents, patients, researchers and advocates gathered together in Chicago in early February for the first meeting of the newly formed PKD in Children Council. As the PKD Foundation seeks to...
Even the sun needs downtime
“Wow—so much to do—don’t get bogged down with the burden of disease. Try to keep your composure and quality of life.” This was the start of a message I recently received from my nephrologist....
The perfect match: husband donates kidney to wife
In honor of today being both Valentine’s Day and National Donor Day, we’re featuring a story that shows the power of love twice over! Meet Tracey Barbour. Tracey married her husband, Ian, in...
Spicy sweet potato fries from Cooking Well
In our ongoing adventure to test the cooking aptitude of the PKD Foundation staff, Joe Berrigan, our Community Fundraising Specialist, and sous-chef, Lando, made spicy sweet potato fries from our...
Hunger vs. thirst: tips to tell the difference
How often have you heard your stomach growl, felt a little light-headed or had an oncoming headache and immediately reached for a snack? You might be surprised to find that what can feel like a...
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Elizabeth Hogan, ARPKD patient, fundraiser, and advocate. Published on February 28, 2018 | Today, on Rare Disease Day, we giveRead More -
When it comes to finding a living donor, many PKD patients face the same difficult question: how do you askRead More -
Start with good ingredients to get great flavor! The Super Bowl may have passed but that doesn’t mean we can’tRead More -
Peeking in the window of a clothing store in Sedona, Ariz., the first thing I saw was a shirt withRead More -
PKD parents, patients, researchers and advocates gathered together in Chicago in early February for the first meeting of the newlyRead More -
“Wow—so much to do—don’t get bogged down with the burden of disease. Try to keep your composure and quality ofRead More
