Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
PKD in Children conference: parents building a support network
On May 3–5, parents of children with ARPKD and ADPKD gathered in Chicago, Illinois, for the PKD in Children conference. The event is a destination for parents to receive essential information on...
Atlanta Walk for PKD – October 12, 2019
Sign up today for the 2019 Atlanta Walk for PKD and be a part of the largest gathering of PKD patients, friends and family in your community. 100% of each donation funds life-saving research and...
Finding collaboration opportunities with the National Institute of Diabetes Digestive and Kidney Diseases (NIDDK)
On April 23, several of us from the PKD Foundation (PKDF) met with our colleagues from the National Institute of Diabetes Digestive and Kidney Diseases (NIDDK) in Bethesda, Maryland. NIDDK, part...
ADPKD Registry: learning in real time
Published May 14, 2019 PKD patients are very well-informed about their disease and its consequences. As a disease impacting multiple generations or appearing unexpectedly as a spontaneous...
Building awareness through partnership: PKD Foundation and Discovery Communications / Discovery en Español
If you follow us on social media (Facebook, Twitter, Instagram and LinkedIn), we hope you’ve already heard about our exciting new partnership with Discovery Communications / Discovery en Español....
PKDF Salt Lake City Walk Coordinator helps us celebrate Volunteer Appreciation Week!
My name is Lindsay Roper, I grew up in northern California and met my husband Alan while we were going to college in Utah. We married and moved to Orem, UT, where we live with our daughters Sadie...
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Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive PolycysticRead More -
Diagnosed with PKD nearly 20 years ago, Karyn Waxman helped establish the Memphis Chapter and has acted as its coordinatorRead More -
Published June 4, 2019 In May we announced the upcoming ADPKD Patient Registry, a collection of individuals with Autosomal DominantRead More -
On May 3–5, parents of children with ARPKD and ADPKD gathered in Chicago, Illinois, for the PKD in Children conference.Read More
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Sign up today for the 2019 Atlanta Walk for PKD and be a part of the largest gathering of PKDRead More -
On April 23, several of us from the PKD Foundation (PKDF) met with our colleagues from the National Institute ofRead More
