Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
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Lifestyle tips from the PKD community
Here at the PKD Foundation, we love seeing how engaged the greater community is when we reach out for your stories. In the past couple of weeks, we've been asking on social media for your best...
Local volunteer leaders give an inside look at the New York City Chapter
Our nationwide Chapters are a wonderful way to connect with your local PKD community! New York City Chapter Co-Coordinators Sarah Giller and Meg Munits know this best, and were excited to share...
Fresh Tzatziki from Cooking Well
A sauce can truly make a dish--it can add depth of flavor, a zing of zest, and tie a plate together. When you whip up Fresh Tzatziki from our cookbook, Cooking Well, you can serve it up with...
Local volunteer leaders give an inside look at the Detroit Chapter
Greetings from Kim and Mike Ahrens! We are Co-Coordinators for the Detroit Chapter along with Cheryl Sherman. Our PKD journey began when Kim was diagnosed with PKD in 2005 while she served as...
Voices of PKD: Jim Myers, kidney advocate
My name is Jim Myers. I have been fighting PKD/kidney disease for nearly 40 years. I currently live in Hammond, Ind. My mother and father ran a couple of grocery stores in my hometown, Cedar...
PKDF Chief Science Officer Dr. David Baron co-authors new paper with FDA and top nephrologists
Only a few new drugs for chronic kidney disease (CKD) have been approved in the last several decades because drug companies have shied away from the renal “space.” The need for novel therapies...
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This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare Disease Week, and I wasRead More
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Our Fundraise Your Way program is one of the best ways you can help create a future without PKD. When you turnRead More
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We’re spreading double the love today for National Donor Day! In the US alone, more than 120,000 people are waitingRead More
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Our nationwide Chapters are a wonderful way to connect with your local PKD community! New York City Chapter Co-Coordinators SarahRead More