Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
PKD researcher weighs in on how patient participation brought about first treatment
The announcement of our first FDA-approved treatment for ADPKD is not only a major success for PKD patients, but also for nephrologists who have spent decades caring for their health. We reached...
PKD Foundation Chief Scientific Officer’s take on FDA-approved treatment as a PKD patient
Our very own Dr. David Baron shares his personal background with PKD, his journey joining the Foundation and his thoughts on the exciting news about the new treatment for ADPKD: Little did...
Mexican Layer Dip from Cooking Well
Cinco De Mayo is tomorrow, and we have the perfect recipe that will help you get a little festive. Our Mexican layer dip from Cooking Well is a low calorie, simple and delicious recipe that will...
A treatment for ADPKD: long awaited, finally arrived
We reached out to Honorable Karen Thurman, a former member of the U. S. House of Representatives, to hear her journey on dealing with PKD in her family. Karen also shares her thoughts on the news...
My best friend is giving me the gift of life: A transplant Q&A
We're ending on a high note as Donate Life Month draws to a close: our very own Senior Director of Community Fundraising, Sue Full, has been approved as a transplant match for best friend and...
How we reached the first ADPKD treatment
In light of our exciting news about tolvaptan receiving FDA approval as the first ADPKD treatment, we reached out to Benjamin Cowley Jr., M.D. to explain how we reached this amazing milestone....
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The U.S. Food and Drug Administration (FDA) has updated the requirements for the Nutrition Facts label. These changes are basedRead More -
This Mother’s Day, we’re celebrating moms and major milestones. We reached out to Jullie Hoggan, who took part in theRead More -
“You received your treatment for PKD when you received my kidney. Instead of moving on and focusing on your life,Read More -
The announcement of our first FDA-approved treatment for ADPKD is not only a major success for PKD patients, but alsoRead More -
Dr. David Baron, PKD Foundation Chief Scientific Officer Our very own Dr. David Baron shares his personal background with PKD,Read More
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Cinco De Mayo is tomorrow, and we have the perfect recipe that will help you get a little festive. OurRead More
